Gabriella Luiza Lima de Azeredo, a 13-year-old resident of Rio de Janeiro, was diagnosed with Cystic Fibrosis at 3 months of age. A rare and progressive genetic disease. There are over 2,000 genetic mutations of Cystic Fibrosis and one of them is the Delta F508 Homozygote, which is one of the mutations that affect Gabriella.
Since her diagnosis, Gabriella has had an intense daily routine of medications, inhalations, dietary supplements, and respiratory physiotherapy. Unfortunately, she developed diabetes as a complication of Cystic Fibrosis. Insulin injections are now also frequent in her treatment. All this without counting the various hospitalizations throughout her life, including ICU stays.
Medications and treatments are palliative. They only treat the symptoms of the disease, even with full treatment the disease progresses and there is no way to fix it. Unfortunately, organ transplants are only recommended in more serious cases.
The disease has progressed severely in recent years. Since September 2021, Gabriella has been using oxygen at home 24 hours a day. She has been listed for a lung transplant, as her lung capacity is ONLY 22%.
In 2019, the Food and Drug Administration (FDA) approved a drug called Trikafta, which promises to change the lives of eligible patients. This is the case for Gabriella. The drug is already approved by Anvisa for commercialization in Brazil. However, Trikafta costs around $30,000 per month. The light at the end of the tunnel is that an Argentine pharmaceutical company, Gador, launched a generic called TRIXACAR, whose monthly dose costs an average of $3,500. Even so, the price is still prohibitive! But the drug is Gabriella's last chance.
Silvana Lima, Gabriella's mother, has had enough of seeing people lose their lives to this disease! So, if there's a chance to improve Gabriella's quality of life and even extend it, let's help this mother who is fighting for better days for her daughter.
Silvana filed a lawsuit demanding that the government purchase the medication. However, the request was denied by the Rio de Janeiro court. Silvana, through her lawyer, continues to fight for this cause. While she waits, the search for other alternatives to obtain the generic drug in Argentina continues.
The goal is to reach R$22,000 (Brazilian Currency Reais) each month for Gabriella to receive 1 month of treatment.
Gabriella's family is far from having the financial means to bear this entire cost alone each month. Therefore, she is asking for the collaboration of anyone who can help with any amount so that Silvana can purchase the medication that keeps her daughter alive.
If you are in Brazil, you can contribute via Vakinha or via Pix, using the key +55 (21) 97263-5462 or +55 (21) 99811-7498.
If you are outside of Brazil, please contact Silvana via Whatsapp: +55 (21) 97263-5462
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